The Write 31 Days challenge is on! It's been four-and-a-half years since we started this blog as a means for medical updates, which are now completely behind us. As if to underscore its unstoppable pace, life has kept on moving and we're now in an empty nest. Let the adventure begin!
Monday, August 30, 2010
Images from Surgery Day
We saw so many different people in the preop area -- I wish I could remember their names! Without exception, their kind manner and easy way of making us comfortable demonstrated how much they enjoy their jobs and love people. This nice lady was getting all the lines in place to receive the you-will-not-remember-this-conversation drugs as well as bag after bag of Ringer's lactate and other fluids Charlie was to receive over the next two days in the hospital.
Who would ever know this guy was about to receive his "blue cap" and move on to surgery. Look at that smile! It's apparent Patrick's presence had a calming influence as we waited for the OR to be ready. One of the nurses came in and reported to us that they were almost finished -- still putting on the table extensions so his feet wouldn't hang off and possibly receive nerve damage during the three-hour surgery. The red cap meant not every person who needed to see him before the operation had made their visit yet. Once the final i's were dotted and t's crossed on his electronic medical record, the red was swapped out for blue, and he was whisked away.
Patrick Shealy, Kathy Lewis, and Steve and Judy Davenport made up Charlie's fantastic waiting room posse. Shortly after he was moved to the Operating Room and we knew there would be no updates for at least two hours, the five of us ventured to the hospital cateferia where more detailed introductions were made and we enjoyed a bite of lunch. This was yet another picture of the Body of Christ; I was the only one who personally knew every of these five, yet we all talked, and prayed, and shared a camaraderie of the Spirit together as if we were all long-lost family.
I suppose there is irony in the fact that the skies outside of Duke Hospital were stormy and threatening all afternoon. All the while indoors, God was providing an incredible peace and assurance to each of us as we waited.
We are still in some ways waiting. We will have a follow-up visit with the surgeon on September 9 to remove the staples from his wound and pull the Foley catheter. This will also be when we will find out the pathology results. The entire prostate, pelvic lymph nodes, and that pesky piece of tissue from the bladder are all being analyzed to determine whether there was any spread of cancer beyond the prostate. While we wait for those answers, we will continue to handle the various tasks involved in getting Charlie strong again, providing nourishing meals, dosing the handful of meds several times a day, and encouraging his gradual return to light physical activity. All in good time, and all the while trusting God.
Sunday, August 29, 2010
Click here to access the meal calendar.
Thank you, Annette, for putting your good idea into action!
Before this weekend, I would have said we don't need any help and would have mustered up every ounce of super-mom strength I could find to keep all the balls in the air. But I'm beginning to see the light that by recognizing my own weakness and letting others step in to fill the gaps, I am enabling the Body to function in the way it is intended. I hope I never forget these simple lessons and will in the future be able to emulate the kindness, love, and generosity we are being shown each day.
Saturday, August 28, 2010
Laughter is Good Medicine
I think we're starting to figure out our routine as far as dosing and keeping track of medications, catheter and wound care, and easy-to-digest meals. I ended up writing everything down; I don't want to entrust giving meds to a memory with the holding power of a sieve. So far, so good.
You might get a chuckle out of a few of the comments I've overheard Charlie say this week. He was so frustrated by his drugged state when Patrick came by the hospital room on Wednesday morning. He walked into the room, and Charlie knew he knew him, but that's as far as his mind would go at the moment. He said, "I know who you are, but I have no idea what your name is." Another remark was made this afternoon on the phone to a friend who has also recently had a lifesaving medical procedure. "How many staples did you get? I have 30."
Thursday, August 26, 2010
Sweet Reunions
This week, two incredibly special people managed to create breaks in their busy lives and visit Charlie. The first dropped in after we arrived in the Triangle area on Monday evening. Her name is Holly, and she was truly one of the most bubbly and eager middle schoolers that ever walked the planet when we first met her, circa 1988. Now she is a genuine grown-up, a beautiful young lady, inside and out, walking day by day in a growing relationship with her heavenly Father. We had such a fun time recalling old youth group memories and simply catching up on more recent life happenings. However, her almost-three-year-old daughter, Riley, stole the show! We were entertained by every imaginable antic during the course of their visit. (sorry I didn't have access to a photo editor with red-eye correction when uploading this pic)
This afternoon, Holly delivered a handmade Riley creation to cheer Mr. Charlie.
The second visitor arrived unexpectedly in the waiting area shortly after surgery while Charlie was being readied for transport up to his room. While Kathy waited for me to finish my visit in the Recovery Room, a man she didn't know approached her and asked if she was with Charlie Anderson's family. When she answered in the affirmative, he introduced himself and the conversation was off and running. When I came out to find Kathy, I was completely caught off guard and struggled to put the right name with his face, after nearly twenty years since last seeing him when we moved away from this area. After a quick refresh of my memory, Jay and I spent nearly the next hour standing next to Charlie's bedside talking about his current life, family, and of course our shared past. Charlie was still very much feeling the after-effects of the anesthesia during our conversation, but apparently he was somewhat coherent because at one point he brightened suddenly and did his best to clear up the details we were apparently skipping over. I told Jay that Charlie still tells "Jay stories" at times in our Community Group, and he replied that he sometimes uses recalled incidents of Charlie and the White Plains youth group as sermon illustrations. He related how a "failed" Bible study one summer (Jay was the only teen to show up) was the first step toward him gaining a true understanding of the Word. Tuesday night in that hospital room, he thanked Charlie for taking the time to study Philippians with him verse by verse and show him that it really is possible to "get it" and to apply those truths of scripture to real life.
No one in their right mind would want to experience major surgery and all its associated ups and downs, but if it comes with as rich a reward as these two special people brought us this week, it would all be worth it.
Moving in the Right Direction
The other significant change is that his appetite is starting to return. After we got here and he was settled into a comfy chair on the first floor, I headed to the pharmacy to fill his prescriptions and pick up some special-request grocery items from the store. We had talked in the car on the way home from the hospital about what he might be craving; I was digging deep to come up with something creative that might appeal to him and spark his desire to eat. He seemed to click with the idea of a milkshake, so on the way home, meds in hand, I stopped for a Chick Fil-A milkshake. (Yes, I was still having a hard time coming off of the hospital habit of watching him pick lightly at something and then proceed to demolish it for myself, so I ordered the large shake, knowing full well he wouldn't eat it all, and then I would get to enjoy some, too!) I was right about predicting how much he would eat, and he and I both finished the afternoon with satisfied bellies.
After a restful nap, he perked up pretty well and ate a well-rounded supper, although the portions were still much smaller than what would normally appear on Charlie's plate. At the moment, Judy is tempting him with a nightcap of homemade apple crisp. I'm sure she won't have to twist my arm!
The plan for Friday is to sleep in without an alarm and then hit I-40 after morning traffic subsides, probably between 9 and 9:30. Our special treat tomorrow morning will be to meet Steve and Judy's two beautiful grandchildren. Could there be a better way to put smiles on our faces to start off the trip?
Wednesday, August 25, 2010
One Milkshake, Two Straws, Please
Even though there were a few rough spots today, it was mostly a very good day. Patrick was headed back to Greenville early this morning, and he got to stop in and check on things before Kathy and I arrived. Nice that there was someone familiar there to start the day with. Kathy got me set up with her recently retired laptop PC (for you Mac fans out there, she's now one of you) in order to stay semi-connected to the outside world. I could probably have filmed one of those "Can you hear me now?" commercials featuring the contortionists, considering the the crazy repositioning I was trying so the hospital wireless signal would at least remain at "low" strength instead of "very low".
Charlie and the nursing staff made good progress on pain control, and we got to see our surgeon late this afternoon. That reminds me of an enjoyable moment with the doctor where one casual question about his involvement in an event at the hospital this weekend led to his sort of letting down his guard and venting a little about some frustrations of the day he had today. His comments started with, "Want to know what I've been doing today?" Don't get me wrong, it wasn't in a complaining spirit, just felt like he wanted someone else to understand what things are like from his side of the operating table. We felt a little privileged that he had felt comfortable enough with us to candidly speak "person to person" about things which had nothing to do with Charlie's particular case. Have we mentioned he's a really nice guy, and we really like him? :)
Another sweet moment occurred while we were taking one of the three very successful laps around the triangular-shaped hallway lined with patient's rooms. (Yes, there was that one pain-shortened stroll, but the other three attempts through the day were all good!) As we were in the homestretch of the final leg of the triangle, a man lying on the bed in his own room raised a "victory fist" as he saw Charlie shuffle past his door, and called out, "Keep going!" He looked like he was in the same age range as Charlie, which is a contrast to the mostly elderly patients on the sixth floor, and I stopped briefly to engage him. I asked how long he had been here, and he said they had removed a kidney this morning for cancer. I told him Charlie had his prostate taken out yesterday, also for cancer. I think seeing another "younger" guy on a similar road made him want to make some kind of contact. I think I'll see if Charlie feels up to a quick chat with him on one of his hallway circuits tomorrow. Who knows if we'll encourage him, or maybe the other way around?
And I had to fess up to the nurse (Ray, a really nice guy who I was glad to have helping Charlie in and out of the bed those first few times... how could one of those little bitty female nurses have ever managed to give him the supportive lift he needed?!) when he came around after lunch and again after dinner to record how much his patient had consumed that I had eaten more of the meal than had Charlie. He's done well with taking in lots of liquids, but he just hasn't had much of an appetite for solid food yet. Oh well, we're paying for it and it's going to be thrown away if someone doesn't eat it, right? As far as a review, the oven-baked chicken and seasoned potatoes were much preferred to the meatloaf, sort-of-dry mashed potatoes, and limp broccoli. I can't wait to see what "we're" having for lunch tomorrow!
Tuesday, August 24, 2010
Whew!
I just met with Dr. Polascik after he finished Charlie's surgery. The words of one of the surgical assistants pretty much agree with the doctor's summary, "The patient did well." Kathy Lewis was with me in the postop consultation room, and after Dr. Polascik left she said, "He's a man of few words." But I was very encouraged with the few words he did speak.
As of morning time on Wednesday:
Kathy spent the night with me at our sweet friends' home last night, and we sniggled our way through moderate traffic to get back to the hospital this morning. Patrick Shealy had been with us in the Surgery Waiting Area yesterday, and he too spent the night nearby. He was here to greet Charlie this morning and had gone before we arrived, but we are so appreciative of him taking the time away from family and other duties in Greenville to come and be a loving support for all of us here.
The nurses have already had Charlie up on his feet to make the few steps from bed to recliner, and he is peacefully snoozing there as I type. Those were a tough couple of steps. But so far, pain seems pretty much under control. Dr. Polascik will be coming to make his rounds sometime later this morning, so I will be glad to hear any more details about what he found at surgery and his opinion of the expectations for recovery going forward.
I apologize for the lapses in communication yesterday. I tried to post last night from the waiting room, but apparently something failed in transmission and the entry did not actually arrive at its intended destination.
For community group members, if you did not get any updates via text message yesterday, I apologize. I sent to everyone I had mobile numbers for in my phone. If you did not hear from me and would like to if I text any updates today, please send a text or email with your number.
Thank you EVERYONE for the beautiful messages you sent yesterday. It was a long day of waiting, but there was never a moment of feeling alone or that any need was going unmet. You are each one a special blessing to our family.
In God's Hands
Monday, August 23, 2010
Resting Up
All went well this afternoon at the pre-op screening appointment. We went through about a half dozen stations on the clinic circuit to learn that all his vital signs are good, the EKG readout didn't set off any alarms, and we've been given the green light for surgery tomorrow afternoon at 1 . We'll arrive at the hospital at around 11 for the staff to get him prepped and ready for surgery. It's hard to believe what we've been waiting for so long is finally here.
As far as what will happen tomorrow, we are told to expect about a three-hour procedure, followed by Recovery Room time for however long it takes him to come out of anesthesia and be declared ready to go to his room. I'm so thankful to have a good friend coming to mark time with me in the surgical waiting area.
The patient is banned from eating anything solid until after surgery, so we stopped and bought him a box of popsicles as suggested by one of the nurses this afternoon. For now, I'll enjoy Judy's home-cooked hospitality on Charlie's behalf, and both of us will try to get a good night's rest.
Sunday, August 22, 2010
The Night Before
As far as Tuesday's surgery goes, we are booked for a this-is-still-subject-to-change-call-again-on-Monday-afternoon-to-verify time slot of 1 pm. We'll definitely let you know if the schedule changes.
We cannot tell you how deeply we appreciate your many kind gestures and tangible acts to help us plan and get through these initial steps of taking care of this cancer. My parents will be here holding down the fort with the twins while we are in Durham, and if you think of something you would like to do to assist while they're here, I'm sure they would accept your offer. I know I have a long way to go in learning to ask for and receive tangible help.
Wednesday, August 18, 2010
Expect the Unexpected
Because Charlie's blood loss during surgery is anticipated to be significant (we're told it's pretty much an unavoidable part of this particular procedure), the requirement of three units of blood means they have to do the whole blood typing and cross-matching routine, as well as a complete battery of lab work. We had originally planned for Charlie to donate some of his own blood in the months before surgery, but then nurses and doctors in our various appointments discouraged it. The phone conversations today revealed that they thought he was banking his own blood, even though these were the same people who told us don't worry about going to that trouble.
All that to say, it seems part of what God is teaching us right now is to trust Him with every detail, even though some of those details seem to be moving targets. Thanks again for continuing to pray for us.
Thank You!!
Monday, August 16, 2010
A Few Thoughts from the Patient
I've asked Terri to show me how to post to this blog. Maybe I'll figure it out after surgery while I have lots of down time. For now, she is excerpting from a couple of messages I sent to various friends over the course of the summer while processing the news of cancer and waiting for the surgery date. I hope you can appreciate how God has been directing my thoughts and giving an indescribable peace.
Here is what I shared with my Friday morning Harper group:
The one “God” thing that impressed upon me on our visit to Duke back in June was that no one there said they “were sorry that we had cancer.” Yes, they deal with cancer on a daily basis, yet their attitude was one of welcome, we will take care of you, and we are here to serve you. The staff told us what they are going to do and told us what we need to do. As I was walking into the clinic that day, I was praying that God would help me be the best that I could be in what I was to hear and what I needed to do. I was going to make it easy on the staff to do their jobs. I knew this was for His glory, His purpose, and a reflection of His love for me.
God the Father, Jesus, or the Holy Spirit never says that they are sorry. They knew what was happening before I did. They are not surprised, and they don't need a “silent moment” to gather their thoughts. They are there with open arms ready to welcome me and take care of me. God is not apologizing to me that I have cancer and the obstacles that it creates for me, my family, and my friends. He has made no mistake and is fully involved with all the details. I have been reading in Romans a lot over the last couple of months, also a couple of books, and I seem to be drawn to that God of peace Who is and the truth that He has set me free from worry if I only would live like He promises. To trust Him to know that tribulations lead to hope and peace.
And here's part of an email I sent to my community group:
Today I got to speak with a dear brother. Life has caused us to drift apart from each other, but now we share the common thread of prostate cancer. The phone call was quite powerful, and I showed more emotion and passion than ever before on the life impact of knowing I have cancer.
There have been some amazing “God” moments where He shows himself so very clearly, so powerful, so reassuring, and so full of grace and love, yet this 30-minute phone conversation may be the top lesson and blessing that God had planned for me through this experience. As this brother has struggled in his recovery, he has shared that struggle with others, and they in turn have shared theirs. This keeps him focused on God and not himself. Through our conversation, we kept going back to how God is in the midst of it all.
You've Asked How You Can Help
As we are finalizing lists and getting everything ready to be in Durham for a few days, we have realized something we could use your help with. We believe we could use a vehicle with a larger back seat so we can minimize post-op discomfort on the drive home. Would anyone be willing to swap vehicles with us for a few days next week? The car we could swap with you is Terri's Ford Taurus, which seats five, but not with enough room to spare for 6' 5" Charlie to sprawl out and get comfortable.
We will be leaving for Duke sometime on Monday morning, and we anticipate driving home either Thursday or Friday. If your driving situation would accommodate trading vehicles (larger car or even a mini-van) for a few days, please let us know.
Monday, August 9, 2010
Keeping it All in Perspective
"All mission fields are not in Africa, South America or even another state. Some of them come with call buttons, IV bags, and tile floors that click with the wheels of hospital beds. Look for those moments as your family travels this road. Someone is going to need to hear the gospel. There may be more than one.
We are praying for an easy surgery, complete recovery, and for the ones you are to touch to be open to your words and may they see lives full of expectations of what the Lord is going to do."
I couldn't have said it better. Something tells me we are going to be blessed even beyond our expectations in ways we could never have anticipated.